Amber Eaton ( One of the Kenrick's friends) is hosting a 31 Gifts party for the Kenrick's with a big portion of the proceeds going to the family. Here is the information so people who read it can shop to support the family!
The info is Go to http://www.mythirtyone.com/yvetteediger
Go to My Events, Amber's 31 Party, and order!
Thank you!!
http://www.mythirtyone.com/yvetteediger
www.mythirtyone.com.
Saturday, March 10, 2012
God is Stronger and We need HIM!
Mar. 5
Night Post:
Tons of things to be thankful for today!! :)
As most of you know today Liam's food tube was removed--wahoooooooo and praise God! All of the nurses therapists have been stopping by to see Liam and all his progress...they seem almost as excitedas we do that the tube was out--everyone was all smiles here (they are sooo good to us here).
-Liam can take all his meds orally now (apple juice and a dixie cup works wonders:)
-I got to feed Liam dinner for the first time this evening and he ate like a champ!
-I could lay Liam down for his nap and bedtime today and not have to watch him like a hawk...didn't have to worry about him pulling the tube out or him getting wrapped up in it. I thinkwe both will get better sleep tonight!!
-MORE AWESOME NEWS-Liam's speech therapist tried regualar liquids with Liam today: water out of his sippy cup. He did not cough! Back to the swallow test we go this week...wahhooo again! if the test goes well then he will not need to drink thickened liquids anymore.
-More words and sentences today from Mr. Liam...please PRAY LIKE CRAZY for his hearing to return so he does not loose all his wonderful words! Here are some fun Liam quotes from today, "you're holding me. I'm a boy. Kadence is a girl". Kadence is one of Liam's good friends from Rapid. Liam used to love to tell mewho was a boy and who was a girl-apparently he still does:) "Say bless you,I sneezed" "Fight bad guys. I'm a hero." haha
-Liam has been enjoying walking (just holds onto our hands) he has been trying to get up and stand on his own, he has been working on going from laying to sitting more, still trying to crawl a lot (of course not when the therapists WANT him to-then he won't, little stinker), he also crawls over to me, tries to climb up to me to sit on my lap (melt my heart:) I love and feel so honored to see God literally healing my son before our very eyes! Please keep praying friends!
Going to bed with a very happy and peaceful heart:)
Prayer requests:
-Please give thanks for all God has done and pray boldly for a COMPLETE HEALING for our little Liam--we give
you the glory Jesus:)
-Pray for Liam's eye appt tomorrow (we need a miracle!) and ear appt on Friday (another miracle needed!) With man this is impossible but with God all things are possible.
-Please pray for Liam to continue to eat and drink well as this is technically just a trial with the feeding tube--so far he's doing great!!
-Please pray for safety and health for my family.
-Swallow test and hearing aides sometime this week.
-Wisdom for Casey and I for decisions we may have to make---we want all of our decisions to be what God wants us to do.
He went to the cross burdened with our sins so that we might die to sin and live an upright life. For by his wounds you have been healed. (1Peter2:24)
Mar. 6
Night Post: Officially 2 months today since Liam was flown out to Sioux Falls
Psalm 73:26 My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Thankfuls:
Thankful for another day.
Thankful that God spared our son.
Thankful that my hubby is on his way here:)
Thankful that this pregnancy has been going so well.
Updates:
Eye Appt-pretty much what I thought about his sight-he doesn't have any. The eyes are fine just not the nerves that connect to the -they are damaged. Liam needs a miracle. Even though I knew this already...it's just hard to hear this from a doctor...it hurts.
Liam had a very cranky afternoon..one of the therapists woke him up from his nap (usually I try to wake him up slowly taking about 15 minutes)...but I thought--why not give it a try. bad idea..he was sooo grumpy for almost the rest of the day. He did eat and drink pretty well again today.
Liam had to be moved out of his hospital crib into our pack and play. He is now pulling himself up onto everything..yet another good problem to have:) Not too much longer now and we will have a hard time stopping this boy:)
Swallow test moved to Thursday now...he did cough a few times on the water when the speech therapist was practicing drinking with him. He still could drink ok other times but she wants to make sure we don't waste our time going over there to just have to do it again later. We may even try next week...we'll see how tomorrow goes.
Today was a little hard especially after the amazing day yesterday. I should probably be expecting it since this whole ordeal has been a roller coaster ride. But we are choosing to be thankful, even when it hurts and is hard. We are choosing to trust in God even when the future seems so uncertain. This verse keeps popping into my head, and I feel like God is saying it not just to Casey and I but it's for Liam too:
Jeremiah 29:11
For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
Prayer Targets:
**Thank you for holding us up in prayer--especially on the days where we are so tired and weak**
-Please pray for a complete miracle for our Liam. Complete restoration. For his eyes to see, and his ears to hear.
Mar. 7
Night Post:
Liam was a happy boy today (for the most part:)...lots of new words coming out...love to hear them but just praying that his hearing come back soon, that the hearing aides help in the meantime (they should be here any day now) I just hate the idea of him losing all these words---plus he's so stinkin' funny-has a great sense of humor for a two year old:) I am very thankful for my son. I was thinking back to when all this started and how scary things were and how we didn't even know if our son would live. I am thankful he's alive, I am thankful God spared him. I am thankful his personality is shining through. I am thankful his walking is coming along so well. We are working on getting him to try to take steps unassisted (with no braces:)...he's been standing on his own for seconds at a time...they are working on what kind of assistance he will need for safety/balance since he can't see---a streamline/lightweight walker and then a 'training cane' is what they are discussing with the blind-deaf specialist. Liam is pulling himself up onto everything now and moving moving moving! we are now very busy busy busy:) He still is eating and drinking great. The new swallow test will now be this coming Tuesday...to give him more practice drinking thin liquids.
Funny Liam quote of the day: Liam was crawling on all fours on his mat "ROAR! I said ROAR! I'm a lion! ROAR"
Please pray for a complete restoration for our Liam. Please Pray and believe that God will heal his eyes and let his ears hear!! With man this is impossible-with GOD all things are possible.
Please pray for the hearing appt on Friday.
Please pray for safety and health of all our family here and traveling.
Thank you Jesus for today.
Mar. 8
Night post: thankful for my husband...for my Liam, for my baby tht will be born soon... thankful for a God that sent his son, a son who died for us. prayer requests for today: Liam's hearing aides don't seem to do anything sooo the big hearing appt is tomorrow. Please pray for wisdom, peace, and comfort for Casey and I...pls pray for Liam to wake up from his nap tomorrow happy for the appt. Jesus, we need you.
Mar. 9
Night Post: thankful that God is with us through this mess. Thankful for a husband who has been just amazing during these past two horrible months...thankful he is helping and reminding me to stay positive and look at the good...not all tht was lost...easier said than done but trying. His reminder to me tonight "Remember...faith a small as a mustard seed". Hearing appt: very long appt for pretty much nothing. Hard to keep a deaf/blind child happy for long in a new situation like tht. Basically we have a cat scan set for Friday to determine Liams eligibility for implants...pls pray for a peace for us and a clear answer as wht we should do for Liam...Pray Jesus just heals him....faith as small as a mustard seed...thank you Jesus for another day.
Mar. 10
Night Post:
well, today was a pretty happy day for Liam. He ate well (still loves it:), he was happy during PT, he likes walking more and more each day-we just hold his hands and he can walk, he crawls more and pulls himself up on stuff more, he climbs onto the 'adult' bed in the room. He's still talking up a storm. Please pray pray pray for a miracle...Please continue to pray for a complete restoration. It may seem impossible...but the BIBLE says "With man this is impossible, but with GOD all things are possible". God can heal deaf ears. God can make blind eyes see. Thankful Liam can still be happy during most of this...he still likes to play. He still wears out his momma by the end of the day:)
-During Liam's nap today I went with my mom and brother to Barnes and Noble (Papa stayed with Liam) and bought him some fun touch and feel/interactive books and a cool puzzle that has doors that you unlock. As I let Liam play with the wooden puzzle he would say "thanks" everytime I helped him 'open a door':) As I write this post, papa and Grandma are playing with Liam as he is riding a little push bike thing and saying "beep beep" as he pushes his self accross the room on it.
Liam quote of the day:
Liam ate extremely well today for lunch so I let him have some reeces pieces for a treat. After lunch was done I had Uncle Billy hold him so Liam could finish his sippy, Liam then said in the sweetest voice "I want some more chocolates!" Of course I had to give him more 'chocolates' to reinforce that speech:)
Prayer Targets:
-I, personally, have had a few rough days. "I know I'm not strong enough to be all I'm supposed to be". So here is where I ask God to be "strong enough' for me. (Listen to that Matthew West Song Casey put on my profile) I had a few days of feeling sorry for myself, feeling sorry for Liam, gave up on any hope left for a healing for Liam, I felt crushed and defeated and tired. Just being honest-I finally hit rock bottom. This whole situation stinks, but really--what does moping around do to help Liam? I knew in my heart that this was another attack (haven't we had enough?!) . "I can do all things through Christ who gives me strength." I am disapointed that I let myself get to that point but I am determined to put these few days behind me and to put my faith, my trust, and my hope in Jesus. I am determined to let HIM be my strength. I am asking you all to pray for that for My husband and I.
-Please Pray, with a renewed urgency, for a complete restoration for our son.
-2nd Swallow test on Tuesday
-Cat scan on Friday for cochlear implant elligiblity
Night Post:
Tons of things to be thankful for today!! :)
As most of you know today Liam's food tube was removed--wahoooooooo and praise God! All of the nurses therapists have been stopping by to see Liam and all his progress...they seem almost as excitedas we do that the tube was out--everyone was all smiles here (they are sooo good to us here).
-Liam can take all his meds orally now (apple juice and a dixie cup works wonders:)
-I got to feed Liam dinner for the first time this evening and he ate like a champ!
-I could lay Liam down for his nap and bedtime today and not have to watch him like a hawk...didn't have to worry about him pulling the tube out or him getting wrapped up in it. I thinkwe both will get better sleep tonight!!
-MORE AWESOME NEWS-Liam's speech therapist tried regualar liquids with Liam today: water out of his sippy cup. He did not cough! Back to the swallow test we go this week...wahhooo again! if the test goes well then he will not need to drink thickened liquids anymore.
-More words and sentences today from Mr. Liam...please PRAY LIKE CRAZY for his hearing to return so he does not loose all his wonderful words! Here are some fun Liam quotes from today, "you're holding me. I'm a boy. Kadence is a girl". Kadence is one of Liam's good friends from Rapid. Liam used to love to tell mewho was a boy and who was a girl-apparently he still does:) "Say bless you,I sneezed" "Fight bad guys. I'm a hero." haha
-Liam has been enjoying walking (just holds onto our hands) he has been trying to get up and stand on his own, he has been working on going from laying to sitting more, still trying to crawl a lot (of course not when the therapists WANT him to-then he won't, little stinker), he also crawls over to me, tries to climb up to me to sit on my lap (melt my heart:) I love and feel so honored to see God literally healing my son before our very eyes! Please keep praying friends!
Going to bed with a very happy and peaceful heart:)
Prayer requests:
-Please give thanks for all God has done and pray boldly for a COMPLETE HEALING for our little Liam--we give
you the glory Jesus:)
-Pray for Liam's eye appt tomorrow (we need a miracle!) and ear appt on Friday (another miracle needed!) With man this is impossible but with God all things are possible.
-Please pray for Liam to continue to eat and drink well as this is technically just a trial with the feeding tube--so far he's doing great!!
-Please pray for safety and health for my family.
-Swallow test and hearing aides sometime this week.
-Wisdom for Casey and I for decisions we may have to make---we want all of our decisions to be what God wants us to do.
He went to the cross burdened with our sins so that we might die to sin and live an upright life. For by his wounds you have been healed. (1Peter2:24)
Mar. 6
Night Post: Officially 2 months today since Liam was flown out to Sioux Falls
Psalm 73:26 My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Thankfuls:
Thankful for another day.
Thankful that God spared our son.
Thankful that my hubby is on his way here:)
Thankful that this pregnancy has been going so well.
Updates:
Eye Appt-pretty much what I thought about his sight-he doesn't have any. The eyes are fine just not the nerves that connect to the -they are damaged. Liam needs a miracle. Even though I knew this already...it's just hard to hear this from a doctor...it hurts.
Liam had a very cranky afternoon..one of the therapists woke him up from his nap (usually I try to wake him up slowly taking about 15 minutes)...but I thought--why not give it a try. bad idea..he was sooo grumpy for almost the rest of the day. He did eat and drink pretty well again today.
Liam had to be moved out of his hospital crib into our pack and play. He is now pulling himself up onto everything..yet another good problem to have:) Not too much longer now and we will have a hard time stopping this boy:)
Swallow test moved to Thursday now...he did cough a few times on the water when the speech therapist was practicing drinking with him. He still could drink ok other times but she wants to make sure we don't waste our time going over there to just have to do it again later. We may even try next week...we'll see how tomorrow goes.
Today was a little hard especially after the amazing day yesterday. I should probably be expecting it since this whole ordeal has been a roller coaster ride. But we are choosing to be thankful, even when it hurts and is hard. We are choosing to trust in God even when the future seems so uncertain. This verse keeps popping into my head, and I feel like God is saying it not just to Casey and I but it's for Liam too:
Jeremiah 29:11
For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
Prayer Targets:
**Thank you for holding us up in prayer--especially on the days where we are so tired and weak**
-Please pray for a complete miracle for our Liam. Complete restoration. For his eyes to see, and his ears to hear.
Mar. 7
Night Post:
Liam was a happy boy today (for the most part:)...lots of new words coming out...love to hear them but just praying that his hearing come back soon, that the hearing aides help in the meantime (they should be here any day now) I just hate the idea of him losing all these words---plus he's so stinkin' funny-has a great sense of humor for a two year old:) I am very thankful for my son. I was thinking back to when all this started and how scary things were and how we didn't even know if our son would live. I am thankful he's alive, I am thankful God spared him. I am thankful his personality is shining through. I am thankful his walking is coming along so well. We are working on getting him to try to take steps unassisted (with no braces:)...he's been standing on his own for seconds at a time...they are working on what kind of assistance he will need for safety/balance since he can't see---a streamline/lightweight walker and then a 'training cane' is what they are discussing with the blind-deaf specialist. Liam is pulling himself up onto everything now and moving moving moving! we are now very busy busy busy:) He still is eating and drinking great. The new swallow test will now be this coming Tuesday...to give him more practice drinking thin liquids.
Funny Liam quote of the day: Liam was crawling on all fours on his mat "ROAR! I said ROAR! I'm a lion! ROAR"
Please pray for a complete restoration for our Liam. Please Pray and believe that God will heal his eyes and let his ears hear!! With man this is impossible-with GOD all things are possible.
Please pray for the hearing appt on Friday.
Please pray for safety and health of all our family here and traveling.
Thank you Jesus for today.
Mar. 8
Night post: thankful for my husband...for my Liam, for my baby tht will be born soon... thankful for a God that sent his son, a son who died for us. prayer requests for today: Liam's hearing aides don't seem to do anything sooo the big hearing appt is tomorrow. Please pray for wisdom, peace, and comfort for Casey and I...pls pray for Liam to wake up from his nap tomorrow happy for the appt. Jesus, we need you.
Mar. 9
Night Post: thankful that God is with us through this mess. Thankful for a husband who has been just amazing during these past two horrible months...thankful he is helping and reminding me to stay positive and look at the good...not all tht was lost...easier said than done but trying. His reminder to me tonight "Remember...faith a small as a mustard seed". Hearing appt: very long appt for pretty much nothing. Hard to keep a deaf/blind child happy for long in a new situation like tht. Basically we have a cat scan set for Friday to determine Liams eligibility for implants...pls pray for a peace for us and a clear answer as wht we should do for Liam...Pray Jesus just heals him....faith as small as a mustard seed...thank you Jesus for another day.
Mar. 10
Night Post:
well, today was a pretty happy day for Liam. He ate well (still loves it:), he was happy during PT, he likes walking more and more each day-we just hold his hands and he can walk, he crawls more and pulls himself up on stuff more, he climbs onto the 'adult' bed in the room. He's still talking up a storm. Please pray pray pray for a miracle...Please continue to pray for a complete restoration. It may seem impossible...but the BIBLE says "With man this is impossible, but with GOD all things are possible". God can heal deaf ears. God can make blind eyes see. Thankful Liam can still be happy during most of this...he still likes to play. He still wears out his momma by the end of the day:)
-During Liam's nap today I went with my mom and brother to Barnes and Noble (Papa stayed with Liam) and bought him some fun touch and feel/interactive books and a cool puzzle that has doors that you unlock. As I let Liam play with the wooden puzzle he would say "thanks" everytime I helped him 'open a door':) As I write this post, papa and Grandma are playing with Liam as he is riding a little push bike thing and saying "beep beep" as he pushes his self accross the room on it.
Liam quote of the day:
Liam ate extremely well today for lunch so I let him have some reeces pieces for a treat. After lunch was done I had Uncle Billy hold him so Liam could finish his sippy, Liam then said in the sweetest voice "I want some more chocolates!" Of course I had to give him more 'chocolates' to reinforce that speech:)
Prayer Targets:
-I, personally, have had a few rough days. "I know I'm not strong enough to be all I'm supposed to be". So here is where I ask God to be "strong enough' for me. (Listen to that Matthew West Song Casey put on my profile) I had a few days of feeling sorry for myself, feeling sorry for Liam, gave up on any hope left for a healing for Liam, I felt crushed and defeated and tired. Just being honest-I finally hit rock bottom. This whole situation stinks, but really--what does moping around do to help Liam? I knew in my heart that this was another attack (haven't we had enough?!) . "I can do all things through Christ who gives me strength." I am disapointed that I let myself get to that point but I am determined to put these few days behind me and to put my faith, my trust, and my hope in Jesus. I am determined to let HIM be my strength. I am asking you all to pray for that for My husband and I.
-Please Pray, with a renewed urgency, for a complete restoration for our son.
-2nd Swallow test on Tuesday
-Cat scan on Friday for cochlear implant elligiblity
Monday, March 5, 2012
Feeding Tube is OUT & Updates!!!!
Picture above is Liam eating for the first time without the feeding tube!!! PRAISE GOD!!!!
Mar. 1
Night Post:
Psalm 5:1-3
Listen to my words, LORD,
consider my sighing
Hear my cry for help,
my King and my God,
for to you I pray.
In the morning, LORD, you hear my voice;
in the morning I lay my requests before you
and wait expectantly. "
Thankfuls:
-Liam slept well again:)
-Happy happy day for Liam today--love it.
-Liam is now walking with just people holding both his hands.
-Liam does not cry through any therapy now (just a few tears here and there)
-Liam got fitted for his hearing aides and they are rush ordered and should be here early next week-praying praying praying they help.
-Liam ate and DRANK today and still no throwing up...He ate a half a grilled cheese for lunch today and a whole piece of banana bread and cheetos for snack/dinner this afternoon. He of course wants to feed himself. Next week we will be trying to get him to eat even more---wahooo!
-Casey had to head back home today and so he picked up Liam to hug him goodbye and Liam said "Dad". Very sweet moment...he knows his daddy!
-Liam just seems to be figuring stuff out...he is very perceptive despite his hearing and sight loss...this is very good to see! We are working hard on creating as much of a routine as we can and signals and signs for him.
Prayer Targets:
-Safety for my hubby while he is away and also for friends and family traveling to visit/help out.
-For us all to continue to grow closer to God through all of this and continue to seek him. For God to continue to call his people to pray!
-For Liam to continue to grow during his therapy sessions and enjoy them.
-Please stand and believe with us that God can and will restore our sweet little man. "Look what the Lord has done!"
-Please pray for another good nights sleep for Liam and another happy day tommorow..pray that he is good and hungry and will try new foods!! (Project Get That Annoying Tube Out:)
We can't thank you all enough for continuing to lift our family up in prayers...may God bless you all!!
Thank you Jesus. We give you the glory for ALL these miracles happening in Liam's Life!
Mar. 2
Night Post:
Thankful:
-Liam had a great morning...just happy. Slept well the night before.
-Ate pretty well today:) (he ate a cinnamon roll, drank a lot, ate some chicken nuggets and part of a fish stick yogurt and cheetos-still working on trying a variety of food) Keep eating buddy and we can work on getting that stupid tube out!
Notes:
I went to our weekly Friday meeting with all of Liam's therapists and case workers. Everyone is extremely pleased with Liam's progress. Our estimated time here is now 3 more weeks. We have a lot of big things happening next week. Liam's first vision test (keep praying for a miracle) on Tuesday and a huge ear appointment on Friday (about 4 hours long)...they worked hard to get an appt this next week to 'get the ball rolling'. He trials his hearing aides (should be here by Tues. or Wed of next week). There is a lot of talk about cochlear implants...there is a small window of when we can do this for Liam (if we choose to) because of the effects of Menegitis. He would be a good canidate since he was born with hearing and still has some speech. They will be checking this kind of stuff at our Friday meeting. Please pray for wisdom for us as this will be a big decision for Casey and I to make. Please pray for God to make it completely obvious what we are supposed to do. Please pray for a complete healing of his ears.
Prayer Targets:
-EYES TO SEE AND EARS TO HEAR!!
-Wisdom for Casey and I
-For Liam to continue to eat more and more and get that tube out
-For all the hearing stuff next week.
-Safety for all family/friends traveling back and forth to be with us
Thank you Jesus. We have so much to be thankful for.
So on a more positive note....Liam had another great day. He is eating well and in a good mood!
Next week we have some big prayer requests coming up. Liam will have an eye test, pray we have another miracle.....Liam will be getting hearing aides also pray those work for him and he can hear his mommy's voice!
God has blessed us even in a horrible situation. I have my son, I begged God to save him and he has. I can not get caught up in how I wanted our life to go, or the things I wanted to do. I need to always remain caught up in the blessings. Phil 4:8 tells us to focus on the good things, not the bad. I choose to thank God everyday for how awesome my life is in the middle of everything. So I am going to try and say something I am thankful for everyday.....today I am going to cheat and say 2 things.
I have a wife that is good to me even though I am not always good to her. She supports me and is a wonderful mother.
Liam, He truly has changed me as a person. I have never felt this kind of love for anyone. I cannot imagine my life without him. He makes me smile everytime I think about him.
Keep praying people.....God aint done.
Finally, brethren, whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things. Phil 4:
Mar. 3
Night Post:
Philippians 4:6,7
Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
Thankfuls:
-Liam ate AMAZING today...his happiest time by far is eating time:) Breakfast: he ate half a pancake, a few pieces of toast, and juice...Lunch: 2 1/2 chicken nuggets, some tater tots, water (thickened still), pudding. For dinner: almost a cup of mac and cheese, a little broccoli, half a rice crispy bar, 4 oz of water, 4oz of OJ, and 4oz of apple juice...WAHOOOOOOO!!! Here is a plan that the speech therapist will suggests to the head therapy doctor (forgot her official title) and the dietician (then to finaly be approved by Liam's peditrician)...Monday turn off the feedings while keeping the tube in-just to see how it goes...Wednesday, if all goes well, goodbye tube! just a tenative schedule please PRAY PRAY PRAY PRAY PRAY
-Liam keeps saying new words each day...still the cutest one to me is when he fake sneezes for the speech therapist to get her to laugh...
-Liam went from laying down to sitting on his OWN today and played with his toys for about a minute before he started to realize he was sitting on his own:)
Just love that boy.
-Thankful for our other little boy that is growing like crazy (along with my belly) and kicking kicking kicking me all day long-love him already. A little less than 8 weeks left-yikes.
-Thankful for my hubby--love him so much
-Thankful for supportive and loving friends and family
Prayer Requests:
With this "thanksgiving" Lord we present these requests to You:
-Please restore Liam's hearing so that he may hear Your word and his Bible stories everynight...so that he may hear all those around him that love him.
-Please restore Liam's sight so he may see his Mommy and Daddy and new baby brother.
-Please give Casey and I wisdom, clear answers, and peace about our family's future.
-Please let everything go smoothly with the feeding tube tenative schedule.
Thank you Jesus.
Mar. 4
Night Post:
Psalm 23
1The LORD is my shepherd; I shall not want. 2He maketh me to lie down in green pastures: he leadeth me beside the still waters. 3He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. 4Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. 5Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.
6Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the LORD for ever.
Verses that many of us know by heart...verse 4 especially has played through my head the past two months...Thankful for HIS Word.
Updates/Thankfuls:
*We have a MOVER on our hands! Liam has officialy crawled on his own. Started with an 'army crawl' then he got up on his hands and knees and started crawling. He can't do it very long yet-has to keep building those muscles. He keeps trying to go from laying to sitting. Needless to say we are kept a lot busier now with this little man...making sure his not banging into stuff and not getting wrapped up in that stupid food tube. A busy little 2 year old is a good 'problem' to have:)
*Cutest thing ever: Liam and I were playing on his mat and he was laying down like normal and started to try to sit up and get on my lap...he then said "hold me" he did this a couple of times this evening...loving all these little blessings!
*Liam ate a ton again today!! yea Liam
Prayer Targets-
-Please pray for all the big things happening this week: tube to come out, eye appt, hearing/ENT appt, and hearing aides. Please Lord, give us all strength and wisdom.
-Please pray for us to all be healthy...pray for my husbands cold to go away so he can come tomorrow
-Continue to pray for Liam's eyes to see and ears to hear. Believe! We have a BIG GOD:)
"Look what the Lord has done!"
Thank you Jesus
Mar. 5
Liam update COULDN'T WAIT UNTIL TONIGHT:)
FEEDING TUBE IS OUT!!!
Thursday, March 1, 2012
THANK YOU JESUS FOR SOME SIGNS OF MORE HEALING!!!
Feb. 26
Night Post:
Thankful things:
-Liam drank from a sippy cup all 3 times we fed him today (we did it twice on our own since he only gets therapies in the morning on weekends).
-He fed himself cherios, cheetoh puff things, bananas, and pancakes. He loves to eat now...excited to see what his weekday therapists think they will be sooo excited (and jealous that they missed this weekend!)
-Liam sat (with some assistance for balance) between the two therapists on his mat and played with toys and jabbered away...usually this makes him scream.
-More words today from Mr. Liam: "so funny" "Mine" "ok" "thanks" "all done" there were a few more that I can't remember off the top of my head.
-When he almost drank all his water (thickened water) from his sippy cup, he shook it to see if there was anything left, then he tried to take the lid off to drink it without the sippy part on it (he used to do this before and used to 'get in trouble' for it:) more of our Liam coming out)
-In the bath he played with one of his squirt whale toys...he used to put it on his stomach and try to make a 'farting' noise--then he would laugh. That's exactly what he tried to do today.
Prayer Request:
-As good as those things were...today was also a terrible day...he would have moments of being happy and playing-and then the rest of the time was screaming, crying, or fussing. He only slept till three in the morning last night and only took about an 1 1/2 nap this morning...please pray for a restful nights sleep for him tonight. He seemed to be having withdrawl symptoms and also gas (upset tummy).
-Liam is having symptoms of a cold. Please pray against that. If he gets sick he has to go back on prednisone until he is better (long story about the medicine history behind that).
-Liam is extremely frusterated the more'awake' he is becoming. He is trying to move and realizing he can't--which is going to be a great motiviator for therapy but is soo hard to watch and I wish he didn't have to go through this. Plus, he can't see or hear.
-PLEASE PRAY FOR A MIRACLE FOR HIS EYES AND EARS. WE KNOW OUR GOD CAN DO THE IMPOSSIBLE.
It was a little hard to stay 'focused' today with all the fussing going on in Liam's room today. I am trying to do the same today as yesterday and focus on all the good things God has done for us. Believing that he can heal our boy and that he is not done yet! Thank you Jesus for this day.
Feb. 27
Night Post:
Thank you for all of you who prayed for us for Liam's rough day today...
Posted this verse b4 but seems fitting to use it again tonight:
Isaiah 35:4-6
4 say to those with fearful hearts,
“Be strong, do not fear;
your God will come,
he will come with vengeance;
with divine retribution
he will come to save you.”
5 Then will the eyes of the blind be opened
and the ears of the deaf unstopped.
6 Then will the lame leap like a deer,
and the mute tongue shout for joy.
Thankfuls:
-My hubby just made it back here safely:) Love having my family all together!
-Liam finally took a good afternoon nap
-They are decreasing Liam's calories tomorrow and increasing the ammount of time they turn it off in the morning...this will allow Liam to feel 'hunger' and he gets to eat as much as his little heart desires! wahooo! Please pray that he eats enough calories since this is just a trial (3 days or so trial).
-This is the cutest thing: Liam was laying on his mat playing next to me. He slapped my hand and said "five" and then he made his hand in a fist and knocked it onto my hand and said "Knuckles"...we did this back and forth for a while and it made him smile (and me too!) Keep praying friends..!!
Prayer Targets:
-Today was a rough one...He did not sleep last night hardly at all and threw up during the night as well. Threw up a little again in the morning during his feeding. The doctor is guessing that the throwing up was the changes in his tube feedings (formula stuff)...they increased the speeed and the ammt and sometimes that makes kiddos sick. and the crying/aggitation/no sleep to the withdrawls. Praying that that is all it is and that it will get better.
-Liam will be having another hearing test tomorrow (as long as he takes his afternoon nap-they want him sleeping) Please pray for some good signs on the test (a miracle?) and pray that he will nap tomorrow.
-Please pray for a good nights sleep for Liam.
-Please pray for him to feel better and have no withdrawls
-Pray that he will eat enough these next few days for them to decrease his tube feedings even more!
-Continue to believe with us and pray for a complete healing for our little Liam.
Thank you Jesus for another day.
Feb. 28
Night Post:
Thankful: Liam did not seem to show hardly any signs today of withdrawls.
Feeding summary:
Woke up this morning, feeling like I should expect something good. Liam had a good nights sleep (Praise God!) when I got to Liam's room in the morning Liam was playing with his Daddy:) No more aggitation. We found out the doctor ordered his calories to be cut in half...so that is awesome-allows him to be hungry. Then Speech came to feed him. Here's the bad part...Liam threw up again. He threw up again at his lunch feeding too. I instantly felt defeated and depressed and discouraged ...we finally got to where Liam wants to eat and they reduced his calories and now he's throwing up. By his dinner 'meal' they didn't let him have any thickened liquids to see if that might be what is making him throw up...he ate a little and didn't throw up for that. Please continue to pray, we need to figure out what is making Liam gag and throw up (possible things: thickened liquids, the tube in his throat, hightened gag reflext, solid foods causing gag reflex...)
I had my regular OB checkup appt. (everything's fine with baby #2 btw:) Casey stayed back to be there for the hearing test...after the appt. I stayed in the car because I was so discouraged from the mornings feedings and didn't want to go back into the room and hear more bad news (how is that for unfocused!?) I did do a lot of praying and wanted to not be negative when I went back into Liam's room. God is good and truly does give peace especially in some of our darkest moments, moments when we feel like we can't go on. Through all of this...I firmly believe that God has continually been telling us to "wait, trust, believe, and I am willing" I'm holding onto that and even when it's hard (like today was!) I choose to trust. Still in my car, Casey calls to tell me about the hearing test.
Hearing Test:
They only tested one ear today (he was sleeping on Casey) and they found improved hearing compared to the hearing test that they administered at Sanfords (which showed he had no hearing). It is only for low tones at a very loud setting but it's something, something that wasn't there before. They will continue more testing and trial different hearing aids to see if they may help. We don't know anything more than that. Pray friends...I believe we are seeing more signs of God miraculously healing our son. Pray pray pray believe believe believe!
Thankful:
Awesome happy day with Liam.
Baby #2 is healthy and getting huge (as well as my belly!)
Liam's hearing improved,even though small, it improved
Prayer Targets:
Liam to eat without throwing up.
Healing for his ears and eyes
sleep for tonight
another happy day for Liam tomorrow!
For us to keep our eyes on Jesus and not our situation
Thank you Jesus for another day.
Sorry this is a long post...:)
Feb. 29
Night Post: Thankful: *Laim had a pretty good day...he slept decent last night and was happy to content for most of the day.*Liam ate better today...they didnt let him have much of the thickened liquids to see if tht was wht was making him throw up...and there was NO throwing up today*Liam sat an his mat for 40 seconds, playing with toys, without help or support*He sat on a bench\step stool for 20ish seconds without support* he is standing with very minimal support *hearing test showed improvement in the right ear as well...still very impaired but improved. going to get fitted for hearing aides asap*he is starting to suck his thumb again Prayer Targets: *Liam to be able to eat and drink (tht tube is driving him crazy!) *Ears to show more and more and more improvements *Eyes to see *continued comfort and peace for Liam *complete healing *safety for friends and family traveling *healthy last 2 months of my pregnancy ***Thank you Jesus for today and answering prayers!!***
Psalms 146....So they told me my son was going to die.....they told me he was going to never move......they told me he would never breathe on his own......They told me we should unhook him and let him die......welllllllll.......good thing I dont put my trust in men, I put it in God!
So I am going to give the short list of awesomeness I have seen in 2 days!
-Liam took 71 steps, with minimal assistance.
-Liam took 8-10 steps with his walker with no help.
-Liam is eating well.
-Liam seems to be over the withdrawals.
-Liam was giving me knuckles and saying knuckles.
So I have had a great few days with my family. Remember if you out your trust and faith in the Lord, it pays off friends. He will not fail you, every man will. There is not a man or woman that will not let you down, lie, cheat, hurt, or steal from you. God is the only one that never let us down and he has been with us through this trial and is continuing to provide.
One last thing......The "Doctors" tested my boy, said he was deaf and would never hear......well they retested him and there is an improvement. He still has a serious hearing loss but it might be able to be corrected with hearing aids. God is good people.....he is moving keep praying!
Night Post:
Thankful things:
-Liam drank from a sippy cup all 3 times we fed him today (we did it twice on our own since he only gets therapies in the morning on weekends).
-He fed himself cherios, cheetoh puff things, bananas, and pancakes. He loves to eat now...excited to see what his weekday therapists think they will be sooo excited (and jealous that they missed this weekend!)
-Liam sat (with some assistance for balance) between the two therapists on his mat and played with toys and jabbered away...usually this makes him scream.
-More words today from Mr. Liam: "so funny" "Mine" "ok" "thanks" "all done" there were a few more that I can't remember off the top of my head.
-When he almost drank all his water (thickened water) from his sippy cup, he shook it to see if there was anything left, then he tried to take the lid off to drink it without the sippy part on it (he used to do this before and used to 'get in trouble' for it:) more of our Liam coming out)
-In the bath he played with one of his squirt whale toys...he used to put it on his stomach and try to make a 'farting' noise--then he would laugh. That's exactly what he tried to do today.
Prayer Request:
-As good as those things were...today was also a terrible day...he would have moments of being happy and playing-and then the rest of the time was screaming, crying, or fussing. He only slept till three in the morning last night and only took about an 1 1/2 nap this morning...please pray for a restful nights sleep for him tonight. He seemed to be having withdrawl symptoms and also gas (upset tummy).
-Liam is having symptoms of a cold. Please pray against that. If he gets sick he has to go back on prednisone until he is better (long story about the medicine history behind that).
-Liam is extremely frusterated the more'awake' he is becoming. He is trying to move and realizing he can't--which is going to be a great motiviator for therapy but is soo hard to watch and I wish he didn't have to go through this. Plus, he can't see or hear.
-PLEASE PRAY FOR A MIRACLE FOR HIS EYES AND EARS. WE KNOW OUR GOD CAN DO THE IMPOSSIBLE.
It was a little hard to stay 'focused' today with all the fussing going on in Liam's room today. I am trying to do the same today as yesterday and focus on all the good things God has done for us. Believing that he can heal our boy and that he is not done yet! Thank you Jesus for this day.
Feb. 27
Night Post:
Thank you for all of you who prayed for us for Liam's rough day today...
Posted this verse b4 but seems fitting to use it again tonight:
Isaiah 35:4-6
4 say to those with fearful hearts,
“Be strong, do not fear;
your God will come,
he will come with vengeance;
with divine retribution
he will come to save you.”
5 Then will the eyes of the blind be opened
and the ears of the deaf unstopped.
6 Then will the lame leap like a deer,
and the mute tongue shout for joy.
Thankfuls:
-My hubby just made it back here safely:) Love having my family all together!
-Liam finally took a good afternoon nap
-They are decreasing Liam's calories tomorrow and increasing the ammount of time they turn it off in the morning...this will allow Liam to feel 'hunger' and he gets to eat as much as his little heart desires! wahooo! Please pray that he eats enough calories since this is just a trial (3 days or so trial).
-This is the cutest thing: Liam was laying on his mat playing next to me. He slapped my hand and said "five" and then he made his hand in a fist and knocked it onto my hand and said "Knuckles"...we did this back and forth for a while and it made him smile (and me too!) Keep praying friends..!!
Prayer Targets:
-Today was a rough one...He did not sleep last night hardly at all and threw up during the night as well. Threw up a little again in the morning during his feeding. The doctor is guessing that the throwing up was the changes in his tube feedings (formula stuff)...they increased the speeed and the ammt and sometimes that makes kiddos sick. and the crying/aggitation/no sleep to the withdrawls. Praying that that is all it is and that it will get better.
-Liam will be having another hearing test tomorrow (as long as he takes his afternoon nap-they want him sleeping) Please pray for some good signs on the test (a miracle?) and pray that he will nap tomorrow.
-Please pray for a good nights sleep for Liam.
-Please pray for him to feel better and have no withdrawls
-Pray that he will eat enough these next few days for them to decrease his tube feedings even more!
-Continue to believe with us and pray for a complete healing for our little Liam.
Thank you Jesus for another day.
Feb. 28
Night Post:
Thankful: Liam did not seem to show hardly any signs today of withdrawls.
Feeding summary:
Woke up this morning, feeling like I should expect something good. Liam had a good nights sleep (Praise God!) when I got to Liam's room in the morning Liam was playing with his Daddy:) No more aggitation. We found out the doctor ordered his calories to be cut in half...so that is awesome-allows him to be hungry. Then Speech came to feed him. Here's the bad part...Liam threw up again. He threw up again at his lunch feeding too. I instantly felt defeated and depressed and discouraged ...we finally got to where Liam wants to eat and they reduced his calories and now he's throwing up. By his dinner 'meal' they didn't let him have any thickened liquids to see if that might be what is making him throw up...he ate a little and didn't throw up for that. Please continue to pray, we need to figure out what is making Liam gag and throw up (possible things: thickened liquids, the tube in his throat, hightened gag reflext, solid foods causing gag reflex...)
I had my regular OB checkup appt. (everything's fine with baby #2 btw:) Casey stayed back to be there for the hearing test...after the appt. I stayed in the car because I was so discouraged from the mornings feedings and didn't want to go back into the room and hear more bad news (how is that for unfocused!?) I did do a lot of praying and wanted to not be negative when I went back into Liam's room. God is good and truly does give peace especially in some of our darkest moments, moments when we feel like we can't go on. Through all of this...I firmly believe that God has continually been telling us to "wait, trust, believe, and I am willing" I'm holding onto that and even when it's hard (like today was!) I choose to trust. Still in my car, Casey calls to tell me about the hearing test.
Hearing Test:
They only tested one ear today (he was sleeping on Casey) and they found improved hearing compared to the hearing test that they administered at Sanfords (which showed he had no hearing). It is only for low tones at a very loud setting but it's something, something that wasn't there before. They will continue more testing and trial different hearing aids to see if they may help. We don't know anything more than that. Pray friends...I believe we are seeing more signs of God miraculously healing our son. Pray pray pray believe believe believe!
Thankful:
Awesome happy day with Liam.
Baby #2 is healthy and getting huge (as well as my belly!)
Liam's hearing improved,even though small, it improved
Prayer Targets:
Liam to eat without throwing up.
Healing for his ears and eyes
sleep for tonight
another happy day for Liam tomorrow!
For us to keep our eyes on Jesus and not our situation
Thank you Jesus for another day.
Sorry this is a long post...:)
Feb. 29
Night Post: Thankful: *Laim had a pretty good day...he slept decent last night and was happy to content for most of the day.*Liam ate better today...they didnt let him have much of the thickened liquids to see if tht was wht was making him throw up...and there was NO throwing up today*Liam sat an his mat for 40 seconds, playing with toys, without help or support*He sat on a bench\step stool for 20ish seconds without support* he is standing with very minimal support *hearing test showed improvement in the right ear as well...still very impaired but improved. going to get fitted for hearing aides asap*he is starting to suck his thumb again Prayer Targets: *Liam to be able to eat and drink (tht tube is driving him crazy!) *Ears to show more and more and more improvements *Eyes to see *continued comfort and peace for Liam *complete healing *safety for friends and family traveling *healthy last 2 months of my pregnancy ***Thank you Jesus for today and answering prayers!!***
Psalms 146....So they told me my son was going to die.....they told me he was going to never move......they told me he would never breathe on his own......They told me we should unhook him and let him die......welllllllll.......good thing I dont put my trust in men, I put it in God!
So I am going to give the short list of awesomeness I have seen in 2 days!
-Liam took 71 steps, with minimal assistance.
-Liam took 8-10 steps with his walker with no help.
-Liam is eating well.
-Liam seems to be over the withdrawals.
-Liam was giving me knuckles and saying knuckles.
So I have had a great few days with my family. Remember if you out your trust and faith in the Lord, it pays off friends. He will not fail you, every man will. There is not a man or woman that will not let you down, lie, cheat, hurt, or steal from you. God is the only one that never let us down and he has been with us through this trial and is continuing to provide.
One last thing......The "Doctors" tested my boy, said he was deaf and would never hear......well they retested him and there is an improvement. He still has a serious hearing loss but it might be able to be corrected with hearing aids. God is good people.....he is moving keep praying!
Saturday, February 25, 2012
THANKFUL
Rejoice always, pray continually, give thanks in all circumstances; for this is God’s will for you in Christ Jesus. 1 Thessalonians 5:16-18
Here's a quote from my devotional today "A grateful heart protects you from negative thinking. Thankfulness enables you to see the abundance I {Jesus} shower upon you daily" (from devotional: Jesus Calling)
Somedays it is easier to be thankful than others...but the word says to be thankful in ALL circumstances...not just when everything is great. Here are some things I am very thankful for..things that help me focus on good...not the circumstance:
-Liam slept awesome last night. Thankful.
-Today, Liam picked up cheerios-on HIS OWN- from his highchair tray and ate them. Thankful.
-Today, Liam picked up his sippy cup, and drank from it, ON HIS OWN..until it was almost gone. He did this morning and evening. Thankful.
-Today, Liam grabbed his spoon and let me put yogurt on it, and he brought it to his mouth and ate it ON HIS OWN...he ate almost half of it. Thankful.
-My son is alive. Thankful.
-I have a husband that loves me and I am in love with him. Thankful.
-We have a little boy to be born in a couple months...whom we love already. Thankful.
-I have family and friends and people who don't even know us...support us like crazy with prayer. Thankful.
-I have a savior who died for me and who loves for me and cares for me (and for everyone:) VERY THANKFUL.
Prayer Targets:
-Despite all the amazing things we saw Liam do today...he had TERRIBLE withdrawls all day today from his patch being taken off last night...He was irriatable, did NOT nap all day, very grumpy. But we saw such good things with the patch off...so we are praying that his behavior was just withdrawls and not the nuerostorming (that is why he was wearing the patch to begin with). Please pray for withdrawl symptoms to be GONE so that he can sleep well tonight and have a great day tomorrow!
-Please pray and believe with us for a COMPLETE RESTORATION for our Liam..we give you the glory Jesus for all you've done so far and are still doing! Thankful.
-Please pray for continued health for our family.
Here's a quote from my devotional today "A grateful heart protects you from negative thinking. Thankfulness enables you to see the abundance I {Jesus} shower upon you daily" (from devotional: Jesus Calling)
Somedays it is easier to be thankful than others...but the word says to be thankful in ALL circumstances...not just when everything is great. Here are some things I am very thankful for..things that help me focus on good...not the circumstance:
-Liam slept awesome last night. Thankful.
-Today, Liam picked up cheerios-on HIS OWN- from his highchair tray and ate them. Thankful.
-Today, Liam picked up his sippy cup, and drank from it, ON HIS OWN..until it was almost gone. He did this morning and evening. Thankful.
-Today, Liam grabbed his spoon and let me put yogurt on it, and he brought it to his mouth and ate it ON HIS OWN...he ate almost half of it. Thankful.
-My son is alive. Thankful.
-I have a husband that loves me and I am in love with him. Thankful.
-We have a little boy to be born in a couple months...whom we love already. Thankful.
-I have family and friends and people who don't even know us...support us like crazy with prayer. Thankful.
-I have a savior who died for me and who loves for me and cares for me (and for everyone:) VERY THANKFUL.
Prayer Targets:
-Despite all the amazing things we saw Liam do today...he had TERRIBLE withdrawls all day today from his patch being taken off last night...He was irriatable, did NOT nap all day, very grumpy. But we saw such good things with the patch off...so we are praying that his behavior was just withdrawls and not the nuerostorming (that is why he was wearing the patch to begin with). Please pray for withdrawl symptoms to be GONE so that he can sleep well tonight and have a great day tomorrow!
-Please pray and believe with us for a COMPLETE RESTORATION for our Liam..we give you the glory Jesus for all you've done so far and are still doing! Thankful.
-Please pray for continued health for our family.
Friday, February 24, 2012
A Great Day of Cheerios:)
Night Post:
Epheisians 3:16-21 I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17 so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18 may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, 19 and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
updates:
Liam didn't sleep well last night (tummy hurt?) and a bit of a crabby morning...but there were some good points!
-God continues to give us peace that only HE can give through something like this and a peace that HE is going to take care of and heal our Liam
-Liam ate a whole ton of cheerios today...yes, solid food cheerios:) You should've seen how excited the therapists were for this (and of course his mom and dad:) He drank 3 ounces of juice from a sippy cup. Go baby go!! Get that tube out
-Liam is officially off all sedative medications...he only has his seizure med left and his sodium med.
-the deaf/blind specialist gave us some good insight on tips to help communicate with Liam and how to create structured routines for him (those of you that know me know that this is right up my alley!:) I get this strong sense that she is a Christian as she said she is praying for him to be healed. She was pretty impressed with the abilities he showed while she watched all his afternoon therapies.
Overwhelmed (and overjoyed:) of the ammount of being being called to pray for our family...we keep getting encouraged with stories from our friends, family, and people we don't even know who love and are praying for our sweet little boy. God's is doing great things and great things to come...I feel it. I believe it.
Prayer Targets:
-Complete healing.
-Eyes to see Ears to hear
-Keep making huge strides in eating
-continued peace and comfort for Liam
-Therapies to go well
-For Liam to get plenty of rest tonight
-safety for all family traveling
"Remember the wonders HE has done!" Psalm 105:5
Epheisians 3:16-21 I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17 so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18 may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, 19 and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
updates:
Liam didn't sleep well last night (tummy hurt?) and a bit of a crabby morning...but there were some good points!
-God continues to give us peace that only HE can give through something like this and a peace that HE is going to take care of and heal our Liam
-Liam ate a whole ton of cheerios today...yes, solid food cheerios:) You should've seen how excited the therapists were for this (and of course his mom and dad:) He drank 3 ounces of juice from a sippy cup. Go baby go!! Get that tube out
-Liam is officially off all sedative medications...he only has his seizure med left and his sodium med.
-the deaf/blind specialist gave us some good insight on tips to help communicate with Liam and how to create structured routines for him (those of you that know me know that this is right up my alley!:) I get this strong sense that she is a Christian as she said she is praying for him to be healed. She was pretty impressed with the abilities he showed while she watched all his afternoon therapies.
Overwhelmed (and overjoyed:) of the ammount of being being called to pray for our family...we keep getting encouraged with stories from our friends, family, and people we don't even know who love and are praying for our sweet little boy. God's is doing great things and great things to come...I feel it. I believe it.
Prayer Targets:
-Complete healing.
-Eyes to see Ears to hear
-Keep making huge strides in eating
-continued peace and comfort for Liam
-Therapies to go well
-For Liam to get plenty of rest tonight
-safety for all family traveling
"Remember the wonders HE has done!" Psalm 105:5
Thursday, February 23, 2012
48 Days
Night Post:
Hebrews 11:1
Now faith is being sure of what we hope for and certain of what we do not see.
We have been in Sioux Falls 48 days now. We are still choosing to believe. We are still clinging to HIS promises and HIS word...we are still praying without ceasing for God to heal our little boy...
Liam had an AWESOME morning. For one, Liam slept through the night finally! Before I came back to the hospital from the RMDhouse (Casey stays with Liam), I prayed for a breakthrough in therapy and for just something good to happen today. I walk into Liam's room and I see Liam sitting on Casey's lap and they were "reading" a touch and feel book together. Liam was feeling on the pages and helping turn the pages. This alone made my heart happy:) Then all his morning therapies went awesome.
Speech Therapy: Liam took a couple of sips from a sippy cup! Of which he could hold on his own. He also ate his first solid food (baby step but huuuuuge deal) he ate a few small pieces of oatmeal bread. Chewed it very well! soooo exciting. He got some kind of food on his face when she was feeding him and it made Liam upset so she gave him the wash cloth and he wiped his own mouth off:)
PT: Liam continued to take good steps
OT: She always helps dress him in the morning to get Liam to help get dressed and undressed. He usually HATES taking his shirt on and off since we've been here..Like screaming hates it. well today she helped take his arms out of the sleeves and he grabbed the shirt with both hands and tried taking it off himself--like it was no big deal! yea Liam:)
Prayer requests:
-Please pray for people to continue to pray for Liam and to come to Jesus.
-Please pray for more huge gains in therapy. We need him sitting on his own without screaming. We need him to eat more of a variety of foods before they will even consider decreasing his feedings. We need that as a next step to get the tube out! Pray for him to drink a lot and eat a lot. Please pray that he will actually enjoy walking too...I think we are getting closer to that one. We are moving his feedings to a highchair tomorrow (verses the chair he used before)...please pray that he will be more independent in eating and of course motivated (they have to 'trick' him into thinking he's doing stuff on his own because if you try to force him to hold a spoon or sippy cup on his own he throws a fit and will refuse)
-Blind/deaf specialists comes in tomorrow
Liam is blind and deaf. This is such a scary time for him and is so hard to watch everyday him struggle so much. No 2year old should ever have to go through this-especially not my baby. It may seem impossible for him to be healed...but good thing we believe and serve a God where anything is possible.
Thank you Jesus for being with us every step of the way...we don't understand all that is happening to us-and to be honest don't like it. But we are trusting you and your word, we are believing for a complete healing, and we know you have a plan for us and we know you can and are using this for good! Use us!
Psalms 73. Sometimes I think trying to do the right thing and be close to God is a waste of time. Other ppl that arent are fine kids are good and there is no problems. Well there is prize for us beyond what this world has to offer.....gotta keep my chin up remember why I'm here.
Today Liam did awesome in therapy! He got his first solid food and chewed it up like a champ! He also used a sippy cup without assistance!
He still needs prayer for his eyes, ears and his crabbiness! But we are believing he will recover and we know Jesus is with him! Keep praying
Hebrews 11:1
Now faith is being sure of what we hope for and certain of what we do not see.
We have been in Sioux Falls 48 days now. We are still choosing to believe. We are still clinging to HIS promises and HIS word...we are still praying without ceasing for God to heal our little boy...
Liam had an AWESOME morning. For one, Liam slept through the night finally! Before I came back to the hospital from the RMDhouse (Casey stays with Liam), I prayed for a breakthrough in therapy and for just something good to happen today. I walk into Liam's room and I see Liam sitting on Casey's lap and they were "reading" a touch and feel book together. Liam was feeling on the pages and helping turn the pages. This alone made my heart happy:) Then all his morning therapies went awesome.
Speech Therapy: Liam took a couple of sips from a sippy cup! Of which he could hold on his own. He also ate his first solid food (baby step but huuuuuge deal) he ate a few small pieces of oatmeal bread. Chewed it very well! soooo exciting. He got some kind of food on his face when she was feeding him and it made Liam upset so she gave him the wash cloth and he wiped his own mouth off:)
PT: Liam continued to take good steps
OT: She always helps dress him in the morning to get Liam to help get dressed and undressed. He usually HATES taking his shirt on and off since we've been here..Like screaming hates it. well today she helped take his arms out of the sleeves and he grabbed the shirt with both hands and tried taking it off himself--like it was no big deal! yea Liam:)
Prayer requests:
-Please pray for people to continue to pray for Liam and to come to Jesus.
-Please pray for more huge gains in therapy. We need him sitting on his own without screaming. We need him to eat more of a variety of foods before they will even consider decreasing his feedings. We need that as a next step to get the tube out! Pray for him to drink a lot and eat a lot. Please pray that he will actually enjoy walking too...I think we are getting closer to that one. We are moving his feedings to a highchair tomorrow (verses the chair he used before)...please pray that he will be more independent in eating and of course motivated (they have to 'trick' him into thinking he's doing stuff on his own because if you try to force him to hold a spoon or sippy cup on his own he throws a fit and will refuse)
-Blind/deaf specialists comes in tomorrow
Liam is blind and deaf. This is such a scary time for him and is so hard to watch everyday him struggle so much. No 2year old should ever have to go through this-especially not my baby. It may seem impossible for him to be healed...but good thing we believe and serve a God where anything is possible.
Thank you Jesus for being with us every step of the way...we don't understand all that is happening to us-and to be honest don't like it. But we are trusting you and your word, we are believing for a complete healing, and we know you have a plan for us and we know you can and are using this for good! Use us!
Psalms 73. Sometimes I think trying to do the right thing and be close to God is a waste of time. Other ppl that arent are fine kids are good and there is no problems. Well there is prize for us beyond what this world has to offer.....gotta keep my chin up remember why I'm here.
Today Liam did awesome in therapy! He got his first solid food and chewed it up like a champ! He also used a sippy cup without assistance!
He still needs prayer for his eyes, ears and his crabbiness! But we are believing he will recover and we know Jesus is with him! Keep praying
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