Mar. 5
Night Post:
Tons of things to be thankful for today!! :)
As most of you know today Liam's food tube was removed--wahoooooooo and praise God! All of the nurses therapists have been stopping by to see Liam and all his progress...they seem almost as excitedas we do that the tube was out--everyone was all smiles here (they are sooo good to us here).
-Liam can take all his meds orally now (apple juice and a dixie cup works wonders:)
-I got to feed Liam dinner for the first time this evening and he ate like a champ!
-I could lay Liam down for his nap and bedtime today and not have to watch him like a hawk...didn't have to worry about him pulling the tube out or him getting wrapped up in it. I thinkwe both will get better sleep tonight!!
-MORE AWESOME NEWS-Liam's speech therapist tried regualar liquids with Liam today: water out of his sippy cup. He did not cough! Back to the swallow test we go this week...wahhooo again! if the test goes well then he will not need to drink thickened liquids anymore.
-More words and sentences today from Mr. Liam...please PRAY LIKE CRAZY for his hearing to return so he does not loose all his wonderful words! Here are some fun Liam quotes from today, "you're holding me. I'm a boy. Kadence is a girl". Kadence is one of Liam's good friends from Rapid. Liam used to love to tell mewho was a boy and who was a girl-apparently he still does:) "Say bless you,I sneezed" "Fight bad guys. I'm a hero." haha
-Liam has been enjoying walking (just holds onto our hands) he has been trying to get up and stand on his own, he has been working on going from laying to sitting more, still trying to crawl a lot (of course not when the therapists WANT him to-then he won't, little stinker), he also crawls over to me, tries to climb up to me to sit on my lap (melt my heart:) I love and feel so honored to see God literally healing my son before our very eyes! Please keep praying friends!
Going to bed with a very happy and peaceful heart:)
Prayer requests:
-Please give thanks for all God has done and pray boldly for a COMPLETE HEALING for our little Liam--we give
you the glory Jesus:)
-Pray for Liam's eye appt tomorrow (we need a miracle!) and ear appt on Friday (another miracle needed!) With man this is impossible but with God all things are possible.
-Please pray for Liam to continue to eat and drink well as this is technically just a trial with the feeding tube--so far he's doing great!!
-Please pray for safety and health for my family.
-Swallow test and hearing aides sometime this week.
-Wisdom for Casey and I for decisions we may have to make---we want all of our decisions to be what God wants us to do.
He went to the cross burdened with our sins so that we might die to sin and live an upright life. For by his wounds you have been healed. (1Peter2:24)
Mar. 6
Night Post: Officially 2 months today since Liam was flown out to Sioux Falls
Psalm 73:26 My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Thankfuls:
Thankful for another day.
Thankful that God spared our son.
Thankful that my hubby is on his way here:)
Thankful that this pregnancy has been going so well.
Updates:
Eye Appt-pretty much what I thought about his sight-he doesn't have any. The eyes are fine just not the nerves that connect to the -they are damaged. Liam needs a miracle. Even though I knew this already...it's just hard to hear this from a doctor...it hurts.
Liam had a very cranky afternoon..one of the therapists woke him up from his nap (usually I try to wake him up slowly taking about 15 minutes)...but I thought--why not give it a try. bad idea..he was sooo grumpy for almost the rest of the day. He did eat and drink pretty well again today.
Liam had to be moved out of his hospital crib into our pack and play. He is now pulling himself up onto everything..yet another good problem to have:) Not too much longer now and we will have a hard time stopping this boy:)
Swallow test moved to Thursday now...he did cough a few times on the water when the speech therapist was practicing drinking with him. He still could drink ok other times but she wants to make sure we don't waste our time going over there to just have to do it again later. We may even try next week...we'll see how tomorrow goes.
Today was a little hard especially after the amazing day yesterday. I should probably be expecting it since this whole ordeal has been a roller coaster ride. But we are choosing to be thankful, even when it hurts and is hard. We are choosing to trust in God even when the future seems so uncertain. This verse keeps popping into my head, and I feel like God is saying it not just to Casey and I but it's for Liam too:
Jeremiah 29:11
For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
Prayer Targets:
**Thank you for holding us up in prayer--especially on the days where we are so tired and weak**
-Please pray for a complete miracle for our Liam. Complete restoration. For his eyes to see, and his ears to hear.
Mar. 7
Night Post:
Liam was a happy boy today (for the most part:)...lots of new words coming out...love to hear them but just praying that his hearing come back soon, that the hearing aides help in the meantime (they should be here any day now) I just hate the idea of him losing all these words---plus he's so stinkin' funny-has a great sense of humor for a two year old:) I am very thankful for my son. I was thinking back to when all this started and how scary things were and how we didn't even know if our son would live. I am thankful he's alive, I am thankful God spared him. I am thankful his personality is shining through. I am thankful his walking is coming along so well. We are working on getting him to try to take steps unassisted (with no braces:)...he's been standing on his own for seconds at a time...they are working on what kind of assistance he will need for safety/balance since he can't see---a streamline/lightweight walker and then a 'training cane' is what they are discussing with the blind-deaf specialist. Liam is pulling himself up onto everything now and moving moving moving! we are now very busy busy busy:) He still is eating and drinking great. The new swallow test will now be this coming Tuesday...to give him more practice drinking thin liquids.
Funny Liam quote of the day: Liam was crawling on all fours on his mat "ROAR! I said ROAR! I'm a lion! ROAR"
Please pray for a complete restoration for our Liam. Please Pray and believe that God will heal his eyes and let his ears hear!! With man this is impossible-with GOD all things are possible.
Please pray for the hearing appt on Friday.
Please pray for safety and health of all our family here and traveling.
Thank you Jesus for today.
Mar. 8
Night post: thankful for my husband...for my Liam, for my baby tht will be born soon... thankful for a God that sent his son, a son who died for us. prayer requests for today: Liam's hearing aides don't seem to do anything sooo the big hearing appt is tomorrow. Please pray for wisdom, peace, and comfort for Casey and I...pls pray for Liam to wake up from his nap tomorrow happy for the appt. Jesus, we need you.
Mar. 9
Night Post: thankful that God is with us through this mess. Thankful for a husband who has been just amazing during these past two horrible months...thankful he is helping and reminding me to stay positive and look at the good...not all tht was lost...easier said than done but trying. His reminder to me tonight "Remember...faith a small as a mustard seed". Hearing appt: very long appt for pretty much nothing. Hard to keep a deaf/blind child happy for long in a new situation like tht. Basically we have a cat scan set for Friday to determine Liams eligibility for implants...pls pray for a peace for us and a clear answer as wht we should do for Liam...Pray Jesus just heals him....faith as small as a mustard seed...thank you Jesus for another day.
Mar. 10
Night Post:
well, today was a pretty happy day for Liam. He ate well (still loves it:), he was happy during PT, he likes walking more and more each day-we just hold his hands and he can walk, he crawls more and pulls himself up on stuff more, he climbs onto the 'adult' bed in the room. He's still talking up a storm. Please pray pray pray for a miracle...Please continue to pray for a complete restoration. It may seem impossible...but the BIBLE says "With man this is impossible, but with GOD all things are possible". God can heal deaf ears. God can make blind eyes see. Thankful Liam can still be happy during most of this...he still likes to play. He still wears out his momma by the end of the day:)
-During Liam's nap today I went with my mom and brother to Barnes and Noble (Papa stayed with Liam) and bought him some fun touch and feel/interactive books and a cool puzzle that has doors that you unlock. As I let Liam play with the wooden puzzle he would say "thanks" everytime I helped him 'open a door':) As I write this post, papa and Grandma are playing with Liam as he is riding a little push bike thing and saying "beep beep" as he pushes his self accross the room on it.
Liam quote of the day:
Liam ate extremely well today for lunch so I let him have some reeces pieces for a treat. After lunch was done I had Uncle Billy hold him so Liam could finish his sippy, Liam then said in the sweetest voice "I want some more chocolates!" Of course I had to give him more 'chocolates' to reinforce that speech:)
Prayer Targets:
-I, personally, have had a few rough days. "I know I'm not strong enough to be all I'm supposed to be". So here is where I ask God to be "strong enough' for me. (Listen to that Matthew West Song Casey put on my profile) I had a few days of feeling sorry for myself, feeling sorry for Liam, gave up on any hope left for a healing for Liam, I felt crushed and defeated and tired. Just being honest-I finally hit rock bottom. This whole situation stinks, but really--what does moping around do to help Liam? I knew in my heart that this was another attack (haven't we had enough?!) . "I can do all things through Christ who gives me strength." I am disapointed that I let myself get to that point but I am determined to put these few days behind me and to put my faith, my trust, and my hope in Jesus. I am determined to let HIM be my strength. I am asking you all to pray for that for My husband and I.
-Please Pray, with a renewed urgency, for a complete restoration for our son.
-2nd Swallow test on Tuesday
-Cat scan on Friday for cochlear implant elligiblity
Praise God! What amazing progress little Liam is making! Thank our amazing God for the wonderful doctors, therapists, nurses, all those caring for your precious boy. I am reading the book "sun stand still" by Steven furtick. He writes about Joshua asks God for the sun to stand still and it does! What happens when we ask God for the impossible..... we have an awesome God! Keep your faith team Kenrick....God is with you! We are praying for you all! The Wright family
ReplyDeleteGo Liam Go! You can fight this! No matter what I know that God is whispering to you and that you will never know anything but joy and happiness no matter what. I am praying like mad for you! Keep up the good fight Kenricks! You are so very loved here in Rapid City! The Mabbitt/Green Family!
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